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The FOD (Fatty Oxidation Disorders) Family Support Group™ was 'born' in 1991 as a way of dealing with the sudden death of our 21-month old daughter, Kristen, in 1985 from undiagnosed MCAD. Initially, she was 'diagnosed' with Reye's Syndrome and it was not until one year later, when our son Kevin was born and diagnosed with MCAD that we discovered Kristen also had this rare metabolic disorder. Our third child Brian, is a carrier of MCAD and not directly affected. To say the least, our family has been changed forever by this genetic disorder. Awareness of these disorders is imperative for early diagnosis and treatment, prompting us to be strongly committed to promoting expanded ~ universal and comprehensive ~ newborn screening for FODs (and several other metabolic disorders) ~ possibly through future regional testing centers. We do not want other families to needlessly go through what we have experienced. From our family to yours, we want you to know... 'You are NOT alone! We Are All in This Together!' Take care... Deb & Dan Gould Kristen, Kevin & Brian
